Lupus Events

UPDATES!!!!! (Shows and more) by Shanelle Gabriel

Hello family, 

You know 2016 is over once (the holiday formally known as) Thanksgiving hits. I can't help but be thankful for the blessings in my life: watching my niece get a perfect score on her spelling test for the 6th time, graduating my first cohort of students at the life skills and job training program I work for, finishing a song with the great folk at JahRock'n Productions, the upcoming events I'll be performing at, and reflecting on the past. Man, I'm blessed, and I know 2017 will be even more amazing. NYC, check out these events, one of which will be streamed live on Facebook for my non-New Yorkers. Also, check out some videos you may have missed. 

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Upcoming Show:
The 2016 African Diaspora Awards Saturday, 12/3 @ 6pm

Florence Gould Hall (55 East 59th Street New York, NY 10022)

This Saturday, I'll be performing at the 6h Annual African Diaspora Awards, a special initiative that aims to celebrate exemplary individuals who have made a significant difference in the African community in the United States. This black tie event will be hosted by African comedian/Instagram sensation Dulo (@IamDulo) and will be honoring some amazing movers and shakers in the community. Oh, and with the promo code "ADA2016" you can get 30% off your ticket! 

Tickets: https://www.eventbrite.com/e/6th-annual-african-diaspora-awards-tickets-28716778658

 

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Upcoming Performance: WWOC Coat Drive & End of the Year Reading (Thursday, 12/8 @ 7pm)

#DECOLONIZETHISPLACE Gallery (55 Walker Street, New York, NY) & LIVE Facebook Stream

Performing a poem of my own and one from my favorite woman writer of Color on Thursday, Dec 8th @ 7pm at the #DECOLONIZETHISPLACE gallery in downtown Manhattan. Hosted by The Women Writers of Color Group & Reading Room. This event will also be available via Facebook live. It is free and for the people. We ask that you bring coats and/or offer a donation to the shelters we'll be supporting. Hosted by Mahogany L. Browne, and also featuring Lynn Procope, Crystal Valentine, Venessa Marcos and more. 
 


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Throwback: "Damn Near" Official Music Video

In case you missed it, this was one of my FAVORITE songs off of my second album, AIM HIGH. The video for "Damn Near" was done by Broadie from Wasted Imagination Productions and has some DOPE visual effects at the end. Shoutout to model Krystal Garner and stylist Q Diva (on the keys) for making cameos, as well as Therapy Wine Bar for hosting us. Check out the video here and lyrics below: https://youtu.be/alYhiKy_TrQ 

DAMN NEAR

You've been the spring in my step
7 months of intimate breaths
You say I'm the one but not yet
(You might be my next regret)

Priority to me
Yet you can't say the same for me
Sayin what will be will be
(Like we don't shape our own destinies)

I'm damn near your everything
As if damn near is comforting
Got my heart on string
On your words dangling

Bridge:
Given you the world
I don't understand
Why I'm not your girl
You're not my man
But I'm damn near it
Ain't that some...

Hook: 
Damn near (4x)
Ain't enough

Poem: Tired of orbiting around your world but never landing/ Made you my galaxy/ 

Thought our love would come crashing together/ 

but you got me drifting/ You know what...

My patience is running thin
You say wait but I don't think I can
Asking me to give you all of me
(Like getting half of you should make me happy)

You say what did I expect
Well we didn't damn near have sex
My heart you didn't damn near protect
You're just another regret

And I'm supposed to act like it's all fine
When damn near's just a freaking waste of my time
Damn near doesn't even make you mine
This is it, it's the last time I settle for…

Hook

Ooh, I want it all baby (repeat 8x)

Collecting broken women to make yourself whole
This type of game I pray gets old
This kinda lovin' you can't afford
It's high risk but high reward

Hook

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Thank you for being a friend. Keep in touch on social media! 
Take care,
Shanelle Gabriel
HBO Def Poet/ Singer/ Activist & Lupus Advocate

www.shanellegabriel.com
www.twitter.com/ShanelleG
www.instagram.com/ShanelleGabriel
SnapChat: @ShanelleGabriel
www.facebook.com/FriendsofShanelleGabriel

Join the Twitter #LupusChat on Sunday, Nov 13 @ 3pm EST by Shanelle Gabriel

Join me and the official host Tiffany Peterson (@Tiffanyandlupus) for a #LupusChat on Sunday, November 13, from 3:00-4:00 PM ET on Twitter.  GSK is pleased to sponsor and participate in the #LupusChat, which will focus on tools and tips lupus patients can use now to improve the patient/physician dialogue. Details are posted @Lupus_Chat and @GSKUS. Feel free to share!

Blog: Neglecting Lupus- The Brat You Never Asked For by Shanelle Gabriel

There are times when I neglect my lupus so much that someone could call ACS on me. Lupus is a part of, and like a baby, I should nurture my health. But I go through these seasons where I pretend lupus isn't a part of me. I mean, I never asked for this cranky child that changes lives, expects me to plan around it, makes me go to bed early, stay up late, cancel dates, stop drinking, sit still, and pacify it with meds. I'm expected to keep my lupus close to my chest because at any point in time, it can wake and it will scream into my joints and bones.

I think anyone with a chronic illness has seasons where they want to pretend it doesn't exist. We watch our friends giggle and chat during a day at the mall, not wanting to be the one to say that your body is ready to go. We let the adrenaline take over as we ignore the late hour, keep dancing, and pretend that, coupled with the dehydration from your friend's birthday shots, we won't feel it the next day...and probably for the next two days. We forget pill boxes on the counter, reschedule doctor appointments when they conflict with work, and miss infusions. We wish our Lupus fog would help us forget we have Lupus instead of forgetting where we put our keys. This brat of a disease sometimes quiets down. But as with real children, quiet can feel like it's getting into something and trouble is a'coming.

Lupus is so unpredictable. But honestly, sometimes it isn't. We know our triggers and what we should do to keep it from acting up and showing out. But it seems easier to try to live life like the young parent whose mom is always down to babysit. Drop lupus off and keep the party (or just the regular life) going. Sadly, it doesn't work that way.

Our stints of disconnecting our lives from our illness, as if the two can't work hand in hand, can put us at risk for severe flares and hospitalizations. Sure, we can have a couple long nights and fun days. But pretending Lupus doesn't exist can cause it to bawl at your joints, keep you up at night, leave you drained during the day, and throw a tantrum so terrible, you'll only desire to be in fetal position for weeks.

I understand wanting to hold on to the life you had when you were single and not paired with a chronic illness. But learning how to have it, grow with it, hate it but still live with it will only benefit me in the long run. Neglecting lupus meant I was neglecting myself. It took a lot to be able to remember that Lupus is something that forces me to listen to my body's cries and nurture my body (something we all need to do with or without an illness). I don't feel guilty for needing to take breaks, power naps, and saying no. I realized the parties I missed were the same as the last ones, and being sober made everyone seem even more hilarious. Even though this brat called Lupus continuously tries to mess up my good time, I still truly believe I can still have a life filled with joy if I just paid it a little attention.
-Shanelle Gabriel

Upcoming Show: THE SOUNDS OF PASSION (Roanoke, VA) 7/25 @ 7pm by Shanelle Gabriel

Next event: THE SOUNDS OF PASSION (one night, 3 part event)
July 25th from 7pm - 12am
Downtown Roanoke, VA
Patrick Henry Hotel Ballroom

Part l
The Laugh At Lupus Comedy Show

Part ll 
The Sounds Of Passion 
(With a performance by ME and Sunshine Anderson)

Part lll
Light Up The Night ( finish the fight)
An evening event with a DJ, spinning the best tunes to get you moving

Tickets are only 40.00! 
Email makinglupuslookgood@gmail.com for tickets

Recap: "The Purple Party" for Lupus (Featured in the LI Herald) by Shanelle Gabriel

Partying to fight lupus
(From the East Rockaway Long Island Herald)

Valley Stream resident Christine Miserandino and her family celebrated her 37th birthday this year in an unusual way. Instead of presenting Miserandino with gifts, the family hosted an “unbirthday party” to raise money for lupus research.

Called the Purple Party, the third annual event was held on Sept. 7 at Pompei Restaurant in West Hempstead and served as a launch for Miserandino’s new charity, the But You Don’t Look Sick Foundation. Miserandino said she was inspired to turn the idea of a birthday on its head as a result of her own experience with lupus. “I have been living with lupus for over 20 years. We started to throw an ‘unbirthday party’ to raise money for lupus research two years ago when I decided I didn’t need gifts, but I wanted to give gifts to others and grant the wish of someday living a life without lupus. I remember being younger, when I was first diagnosed with lupus and wondering if I would even make it to 37, so now every birthday is such a gift and a reason to celebrate,” Miserandino said.

(Read more here: http://liherald.com/eastrockaway/stories/Partying-to-fight-lupus,58364?page=1&content_source)

This Sunday, Sept 7th-> "The Purple Party" (and my performance) For Lupus! by Shanelle Gabriel

Hello friends, 

Please join me as I perform and celebrate the birthday of Christine Miserandino (long time Lupus advocate and creator of the "Spoon Theory") THIS Sunday, Sept 7th @ Pompei from 6:30-10:30pm for her annual 

"Purple Party for Lupus"

Place: Pompei Restaurant, 401 Hempstead Avenue West Hempstead, NY 11552
 
Event/ Ticket includes: 
● DJ & Dancing courtesy of Party Perfect NYC 
● Appetizers, salad, pasta 
● Choice of dinner 
● **Unlimited Beer~Wine ~Soda 
● Specialty Desserts and cake 
● Raffles, 50/50, Silent Auctions 
● **Swag Bags for every attendee worth MORE than the ticket! (last year’s bags were worth double the ticket price.) 

All for only $75!!
PURCHASE TICKETS HERE: https://www.eventbrite.com/e/the-purple-party-dinner-dance-tickets-12454444579

Wear Something Purple!!!!

All proceeds go to the But You Don't Look Sick Foundation, dedicated to helping those living with Lupus (like myself!) 

 

See me rock and strut my stuff @ "Runway for a Cause" - Baltimore, MD by Shanelle Gabriel

 

Come see me sing and strut my stuff on the runway at the "Runway for a Cause" Benefit Fashion Show for Lupus THIS SUNDAY, August 24th from 3-7pm @ The Gala Center in Baltimore, MD. Also featuring Vanessa Rae Bent, DJ Tweety, gift bags by Sephora, a light buffet and more!
Tickets can be purchased at the door or here:http://oterialstylz.ticketleap.com/runway-for-a-cause/

 

 

 

Come Party for A Cause on June 10th in NYC by Shanelle Gabriel

Join Us June 10th for the 2014 Night for the Fight!

Featuring sponsored open bar, hors d'oeuvres, luxury raffle and live auction.

Night for the Fight

Hosted by Shanelle Gabriel

With Special Guest Ashlee White

Founder of Styletto Life and Cast Member of BravoTV's LI Princesses

DJ set by DJ Click'N'Press

#NightForTheFight

Purchase Tickets

Date
Tuesday, June 10, 2014
7PM – 10 PM

Location
Hudson Terrace

621 W. 46th Street (between 11th and 12th Avenues)
New York, NY 10036
Map

**Ticket price: $120

* Must be 21+ to participate

Purchase Tickets

Donate

If you cannot attend the event but would like to contribute,
donate to the S.L.E. Lupus Foundation.

Enter for chances to win exciting raffle and auction prizes
throughout the night.

Raffle and Auction Sponsors:

*As of May 20, 2014

SoulCycle, Kiehl's, Essie, Uber, Eventi Hotel, Finishline Physical Therapy, 5 Napkin Burger, Comedy Central, Estee Lauder, Nike Air, NYSC, NBC, Redken, and MORE!!

Footage from the 2014 World Lupus Day Flash Mob by Shanelle Gabriel

Myself and the S.L.E. Lupus Foundation's Young Leaders took Lupus Research to the Power of 10 in recognition of World Lupus Awareness Day May 10. A Flash Mob of volunteer dancers brought attention to lupus among hundreds of visitors to Union Square Park in Manhattan. Here's the video!!

Help me as I run the 2014 NYC Half Marathon for Lupus! by Shanelle Gabriel

http://www.crowdrise.com/lupusnychalf2014/fundraiser/shanellegabriel

Help raise money for Lupus as I run 13.1 miles!!!

Sooo, I've been living with Lupus for almost 10 years... 10 years is a pretty long time to deal with joint pain, chest pain, achiness, lists of (toxic) medications, doctor & specialists, severe fatigue, anemia, abnormal blood tests, and more.

So I decided that this year, right before my 30th birthday, I'm going to combine my love for running with my love of helping people like me battle Lupus. I'm running in the 2014 NYC Half Marathon to benefit the S.L.E. Lupus Foundation with a goal of $1,500.

I'm on Team Life Without Lupus, which is the official competitive sports team of the S.L.E. Lupus Foundation and its West coast division Lupus LA, the nation’s leading organization providing comprehensive support services and research funding for the lupus community. 

Please donate to my page. $10, $20, $50, $100, any amount helps! 

http://www.crowdrise.com/lupusnychalf2014/fundraiser/shanellegabriel

$10 is:
- Like, two lattes at Starbucks
- A Big Mac Meal at McDonald's (if you still eat that)
- Okay, a burger and shake at Shake Shack
- ONE drink at a NYC bar

Can you donate a "drink" to Lupus?

 

Thank you so much for your support!

http://www.crowdrise.com/lupusnychalf2014/fundraiser/shanellegabriel

*We still have spots avaliable on our team. If you are interested in joining Team Life Without Lupus please apply at the following link --> http://www.lupusny.org/events/upcoming/2014/run-nyc-half-marathon-team-life-without-lupus

May is Lupus Awareness Month... by Shanelle Gabriel

May is here, and it's Lupus Awareness Month! 

Between the "LupUS is US: Inspiring Words of Survival" Show in NYC on May 9th and World Lupus Day Flash Mob on May 10th, if you follow me this month, you'll be hearing me speak a lot more about Lupus (the illness I was diagnosed with in 2004 that affects more than 1.5 million Americans each year.)

Hear more about living with Lupus in my HooplaHa interview here: 

"Kicking it Back for Lupus" at the Village Pourhouse NYC TOMORROW! by Shanelle Gabriel

Join the SLE Lupus Foundation TOMORROW, November 27th for Kicking it Back for Lupus at the Village Pourhouse. Drink specials and a few couple of FREE raffles...who wouldn't love to come out and support this great cause?! It's going to be a great night! Check the info...
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FREE ZUMBA GOLD Fitness Class for People with Chronic Illnesses by Shanelle Gabriel

Come join the SLE Lupus Foundation along with instructor, Dayle Patrick, certified Zumba Gold instructor for a free class on Thursday, November 15th @ 7pm. Zumba Gold is a modified version of Zumba reserved for older participants and people with limited mobility... It’s perfect for those with chronic illnesses! RSVP NOW to guarantee your spot!
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