sle lupus

Help for Lupies: What Do Your Lab Tests Mean? by Shanelle Gabriel

Being that I firmly believe in patients taking an active role in understanding and managing their illness, I did a google search and thanks to www.cure4lupus.org, I was able to find a detailed explaination of the standard Lupus bloodwork and lab test abbreviations and values. Hope this helps!
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Recap: "The Purple Party" for Lupus (Featured in the LI Herald) by Shanelle Gabriel

Partying to fight lupus
(From the East Rockaway Long Island Herald)

Valley Stream resident Christine Miserandino and her family celebrated her 37th birthday this year in an unusual way. Instead of presenting Miserandino with gifts, the family hosted an “unbirthday party” to raise money for lupus research.

Called the Purple Party, the third annual event was held on Sept. 7 at Pompei Restaurant in West Hempstead and served as a launch for Miserandino’s new charity, the But You Don’t Look Sick Foundation. Miserandino said she was inspired to turn the idea of a birthday on its head as a result of her own experience with lupus. “I have been living with lupus for over 20 years. We started to throw an ‘unbirthday party’ to raise money for lupus research two years ago when I decided I didn’t need gifts, but I wanted to give gifts to others and grant the wish of someday living a life without lupus. I remember being younger, when I was first diagnosed with lupus and wondering if I would even make it to 37, so now every birthday is such a gift and a reason to celebrate,” Miserandino said.

(Read more here: http://liherald.com/eastrockaway/stories/Partying-to-fight-lupus,58364?page=1&content_source)

This Sunday, Sept 7th-> "The Purple Party" (and my performance) For Lupus! by Shanelle Gabriel

Hello friends, 

Please join me as I perform and celebrate the birthday of Christine Miserandino (long time Lupus advocate and creator of the "Spoon Theory") THIS Sunday, Sept 7th @ Pompei from 6:30-10:30pm for her annual 

"Purple Party for Lupus"

Place: Pompei Restaurant, 401 Hempstead Avenue West Hempstead, NY 11552
 
Event/ Ticket includes: 
● DJ & Dancing courtesy of Party Perfect NYC 
● Appetizers, salad, pasta 
● Choice of dinner 
● **Unlimited Beer~Wine ~Soda 
● Specialty Desserts and cake 
● Raffles, 50/50, Silent Auctions 
● **Swag Bags for every attendee worth MORE than the ticket! (last year’s bags were worth double the ticket price.) 

All for only $75!!
PURCHASE TICKETS HERE: https://www.eventbrite.com/e/the-purple-party-dinner-dance-tickets-12454444579

Wear Something Purple!!!!

All proceeds go to the But You Don't Look Sick Foundation, dedicated to helping those living with Lupus (like myself!) 

 

See me rock and strut my stuff @ "Runway for a Cause" - Baltimore, MD by Shanelle Gabriel

 

Come see me sing and strut my stuff on the runway at the "Runway for a Cause" Benefit Fashion Show for Lupus THIS SUNDAY, August 24th from 3-7pm @ The Gala Center in Baltimore, MD. Also featuring Vanessa Rae Bent, DJ Tweety, gift bags by Sephora, a light buffet and more!
Tickets can be purchased at the door or here:http://oterialstylz.ticketleap.com/runway-for-a-cause/

 

 

 

Footage from the 2014 World Lupus Day Flash Mob by Shanelle Gabriel

Myself and the S.L.E. Lupus Foundation's Young Leaders took Lupus Research to the Power of 10 in recognition of World Lupus Awareness Day May 10. A Flash Mob of volunteer dancers brought attention to lupus among hundreds of visitors to Union Square Park in Manhattan. Here's the video!!

"Kicking it Back for Lupus" at the Village Pourhouse NYC TOMORROW! by Shanelle Gabriel

Join the SLE Lupus Foundation TOMORROW, November 27th for Kicking it Back for Lupus at the Village Pourhouse. Drink specials and a few couple of FREE raffles...who wouldn't love to come out and support this great cause?! It's going to be a great night! Check the info...
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The Official Rules of Dating While "Dating" Your Chronic Illness by Shanelle Gabriel

With doctor visits, prescription pick-ups, bed rest, and flares, who has time for dating??? While the idea of "searching for the one" seems to have been replaced by searching for the right rheumatologist or specialist, you and I both know that there's a part of us that would like a special someone in our lives. But how do we date when we seem to have baggage from our relationship with our chronic illness?
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Cool Events for My Friends with Lupus (Education Sessions, Free Yoga and Aquatic Tai Chi Classes, and Nutrition Certificate Program) by Shanelle Gabriel

Here are some cool events for my Friends with Lupus, my fellow Lupies! (Education Sessions, Free Yoga and Aquatic Tai Chi Classes, and Nutrition Certificate Program)
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Podcast of My Interview on "In Sickness & In Health- Dating Someone With a Chronic Illness" on The Naked Radio Show by Shanelle Gabriel

In this podcast, we explore how far someone will go for love when their partner gets sick or is dealing with a serious medical condition. Singer/poet/actress Shanelle Gabriel steps into the hot seat to share her struggles with lupus and how the disease has not only impacted her health but her dating life since being diagnosed.
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13.1 has new meaning for me... Running the 2012 NYC Half Maratho by Shanelle Gabriel

I earned this tattoo....



I know, I know, it's a temporary one but I earned the right to wear it. On Sunday, March 19th, 2012, I ran 13.1 miles in the NYC Half Marathon. I did this to raise money for the SLE Lupus Foundation and also to show that even though I'm living with Lupus, I can still accomplish an amazing physical goal.

My day started at 5:30am. Even though I prepared the night before by putting out all my clothes and carb loading at a pasta party my running group Black Girls Run threw, I still felt like I was scrambling. This endeavor had me more nervous than I've ever been, even at a show. "What could go wrong? Just finish. That's all that matters." I encouraged myself and checked my twitter & FB for encouragement from others.


Once the race started, I felt like an ant in an ant farm; there were so many people scattering in the same direction. My biggest fear in this race was the first 6 miles in Central Park. I truly felt unprepared for the plethora of random stupid hills all over the park. Due to my busy schedule over the last few weeks, I missed official Team Life Without Lupus trainings in the park, and man, by the time I got to the 7th Ave exit, my right foot was pissed at me.

People asked me if I stopped at all. Yes, a few times. To replenish at the gatorade/water stations, to re-tie my laces, once to use the port-a-johns (you don't wanna know why), and to stretch out random stiff parts of my body. At one point in time, my foot, lower back, left hip, and chest were all on fire. As I watched a one-legged man with a sporty artificial limb breeze past me (I was one part amazed, two parts embarassed at my slow pace), I sucked it up and focused on the end.


As I made my way down 7th Ave to 42nd Street to the West Side Highway, I was proud to be one of the people being cheered on. It was great seeing my BGR sisters waving banners along the route as well as the random folk giving high-fives as you passed them by. One sign stood out:

"Run like you stole something."

If that was the case, I'd have gotten caught. By the time I got to the 20s on the West Side Highway, I swore I was gonna need to be carried off course if I ran at the pace everyone else was. So I slowed down to a simple lil jog. Besides, everyone around me was running FOR a cause. Darnit, I AM the cause. No killing myself.

I was a lil jealous of the people who's families had cardboard signs with runner's names on it, but I remembered, I'm not running for anyone other than myself and people like me, many of which couldn't be there.

The last mile was gruesome. The final incline to get through the tunnel near the Battery Tunnel to the highway exit for South Street Seaport was murderous on my foot but I got through it, and jogged as best as I could to get to Water Street where the race ended. I crossed the finish line and almost laid out right In the street. My friend Gigi from college was there waiting for me. They gave all participants a medal, water, pretzels, an apple and a foil sheet to wrap around our bodies to keep us warm.

At the end of the day, I am able to say that as a person with Lupus, I reached my goal of running 13.1 miles to show that at the end of the day, LUPUS CAN'T HOLD ME! I did this while my friend Olympia is in the hospital, Adrienne fights every day for the energy to just get through work, Judith works to find new medication while creating a non-profit to help people deal with Lupus in Ghana, and while many others battle the same battle I fight daily with health insurance companies, medications, rest, complications, and more. I hope this run made someone who is battling Lupus smile. I did it for you!